Living a Dignified Life in the Post-COVID World Report – Newz Hook | Disability News

The Sarvodya Collective published a report “Leading a Dignified Life in the Post-COVID World: Learning from the Lived Experience of Intellectual and Developmental Disabilities” on the International Day of Persons with Disabilities (IDPD) 2021.

In keeping with the theme of this year’s annual celebration – Leadership and participation of people with disabilities towards an inclusive, accessible and sustainable post-COVID-19 world – the report brings the voice of the community to highlight the effects of the pandemic. their lives, bringing a new set of pressing and worrying issues while exacerbating existing challenges and recommending ways to better rebuild, centered on the voices of people with intellectual and developmental disabilities (IDD).

Recommendations related to different aspects of the lived experiences of people with IDD

This report provides a qualitative overview of the experiences, challenges and needs of the intellectual and developmental disabilities (IDD) sector in India. Since DLI itself has many overlapping definitions, the scope of the research is comprehensive and includes aspects encompassing all disabilities, including intellectual disability. The report is based on preliminary industry research and is designed to be broad rather than deep in its approach. The intention is to present the challenges and needs of the IDD sector in India throughout the life of a person with IDD. For the scope of this research, the Sarvodya Collective specifically worked with people with intellectual disabilities, Down’s syndrome and ASD as well as their caregivers, and organizations in India working to meet their needs.

Capturing the voices of people with intellectual and developmental disabilities and their families (parents and siblings) is an important task that must be undertaken to create awareness in society. It seems ironic that those who need support the most are those who are neglected and marginalized in a society simply because they are not like the majority. Dr Shanti Auluck, President and Founder, Muskaan PAEPID

Some macro-recommendations include convergence between ministries and policy makers, the use of strategic advocacy, recognition and exploration of intersections in the community to provide more nuanced solutions. In addition, there are recommendations for creating formal forums and spaces for individual and ecosystem support, as well as for using the potential of technological and technological solutions for large-scale capacity building.

Eight key challenges for the IDD sector in India

The report explores eight key issues facing the IDD industry in India. It presents an understanding of the existing challenges heightened by COVID-19 as well as potential recommendations that may mitigate some in a post-COVID era.

  1. Overcome
  2. Formal recognition
  3. Provision of care
  4. Accommodation versus Inclusion
  5. Find a meaningful vocation
  6. In the first line
  7. “And after us? “
  8. COVID-19 and IDD pandemic

This report attempts to highlight the various facets, gaps and challenges that exist across the different stages of the lives of people with DID and their caregivers. The COVID-19 pandemic not only brought significant new challenges, it also amplified existing ones, highlighting already glaring gaps in the IDD ecosystem.

To download: Report – Leading a Life of Dignity in the Post-COVID World

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